Joseph, as he literally ran all over the pre-op wing in his hospital booties |
At 7:50, the ENT came out to talk to us. She said that, given the amount of gunk she had to remove from his ears before she could place the tubes, Joseph was suffering from a not-minor hearing loss before the tubes. Larry and I had been speculating that this was the case, given that he wasn't able to repeat many sounds we made or even register sometimes that we were making sounds.
"Hey look at this" Joseph's happy juice finally was taking effect |
The next 18 hours were a cycle of Joseph waking up, freaking out, pulling at his wires, yanking on his IV, and the nurse giving him an anti-anxiety medicine that put him back to sleep. Our nurse, a mother herself, was amazing. I couldn't have asked for a better, more caring, compassionate, going above and beyond nurse than Jenny P. She really cared about Joseph and me, making him and us comfortable. (I say "us" because he spent most of those 18 hours sleeping on me in some position or another. It was like an international flight.)
First day home and he had to vacuum the playroom. |
First meal back home: big surprise, it is Ramen This is about 28 hours after palate surgery! |
Since then, Joseph has been mostly happy playing with his toys, playing outside, playing with his sister. However, he is not sleeping. Not enough. Not even close to enough. Larry and I are again split into 2 shifts: he has the night shift and I have the morning shift, which isn't how these 2 teachers wanted to spend their summer break. Larry finds himself up at odd hours in the middle of the night, playing with a wide-ass-awake Joseph, I find myself unable to get up and enjoy a morning run when I "sleep in" (as Larry calls it) until 6:30 because Larry needs to get to some sleep and Joseph is, you guessed it, still wide-ass-awake.
But keeping the important things in mind, such as we only had 24 hours in the PICU and some families have to see their kids suffering in there for days or weeks or months for various conditions. We are lucky. Also, we are hoping Joseph heals nicely, starts to get speech, and it feels like now he can really begin his life in America.
A few other thoughts:The two sweetest things happened during our time in the hospital together: one was that as he came out of his haze, Joseph planted 2 sweet kisses on my lips when he woke up at 4:00 am and the other was that 2 times he called out "mum mum!" to me as he came off different sleeps and wanted me to hold him.
Abigail's palate was fixed in China. Who held her for 18 hours after surgery? It makes me sad.